My Story

At 14 in 2005, I realised when I used a tampon, the bleeding would continue. I discovered myself that I had a septum separating my vagina into two. This was confirmed after scans and examinations. They soon had me in hospital ready to remove the septum, but it turned out that it was slightly more complicated than thought and they weren't comfortable to operate. They found that I had two cervices, and I may have had a bicornate or 'heart-shaped' uterus. I was confused and upset but I was very fortunate to have a wonderful support network. I then went in for an MRI scan for further investigations. It was confirmed that I did indeed have a complete double set of reproductive organs; Uterus Didelphys. I was still only 15 and desperately wanted to be 'normal'. I was told nothing could be done. After a lot of research however, we found a gynaecologist in London, UK who could help and offered knowledge as well as viable surgical options. Once I found out that something could be done, a huge weight was lifted off of my shoulders and I was grateful to have options. As I am fortunate to not have physical discomfort as a result of UD, I ultimately opted not to have any surgery. I am now in my 30s and, thankfully, have not had any further complications and have come a long way with how I feel about the condition!

 

I am so grateful for the people I have met through this website. It is due to the support I found here that I was able to process and move on from the difficulties of my diagnosis. I have met hundreds of amazing people with UD and similar conditions, who have given me endless support and hope for the future. I hope you too will find this a supportive and comfortable place to find out more, talk to others and to share support with other people in similar situations.

 

Thank you so much for taking the time to read this.